National bundle of care for children and young people with epilepsy
This bundle contains standards of care for each of the four areas of focus within the CYP programme with key recommendations for systems to consider
This Bundle of Care covers each of the below four areas of focus:
- Variation in care: variation in the delivery of key aspects of epilepsy care continue to persist, such as access to epilepsy specialist nurses and the provision of information on Sudden Unexpected Death in Epilepsy (SUDEP).
- Mental health and wellbeing: CYP with epilepsy have a higher incidence of mental health conditions than the general population, yet screening and support within services vary.
- Tertiary care and epilepsy surgery: CYP may be missing out on, or having delayed access to, specialist neurological care and epilepsy surgery.
- Transition from paediatric to adult services: Support and pathways for patients to transition to adult services varies considerably.