BACD Annual Scientific Meeting 2019

The changing face of paediatric neurodisability: new diagnoses, new interventions, new challenges

Thursday 21 March 2019, Leicester

Registration is now open! Click here to book online.


Registration Fees - Early Bird registration closes Friday 1st March 2019

08.45 - Registration, Refreshments & Exhibition

Session 1:

09.15 - Welcome. Dr Catherine Tuffrey, BACD Academic Convenor

09.20 - Genetic advances and their impact on families Dr Mohnish Suri, Consultant in Clinical Genetics, and Keri Oliver, Genetic Counsellor, Nottingham University Hospitals NHS Trust

10.15 - Managing increasing complexity from a therapist's point of view Dawn Forbes, Bobath Clinical Expert Physiotherapy, and Jenny Carroll, Consultant Physiotherapist, Bobath Children's Therapy Centre Wales

10.50 - Coffee Break, Posters & Exhibition

Session 2:

11.30 - BACD Strategic Research Group Update Prof Jeremy Parr, Chair SRG

11.45 - Paul Polani Lecture: Experimental treatment and life-prolonging treatment - ethics, conflict, and limits Prof Dominic Wilkinson, Professor of Medical Ethics, University of Oxford

12.40 - Lunch, Posters & Exhibition

Session 3:

13.50 - CPIP in the East Midlands Ms Kathryn Price, Consultant Orthopeadic Surgeon, and Rebekah Tinney, Physiotherapist, Nottingham University Hospitals NHS Trust

14.30 - Children with complex care needs - a parent's view Leanne Cooper, parent of Sophie

15.05 - Long term ventilation for children with disabilities - challenges and triumphs Adele Frost, Long Term Ventilation Nurse Specialist, Nottingham University Hospitals NHS Trust

15.40 - The evidence-base for SLT interventions for children with Down syndrome Dr Vesna Stojanovik, Associate Professor of Clinical Linguistics, University of Reading

16.20 - Summing up, Mac Keith Poster Prize presentation

16.30 - Close

Drs (consultants, SASSG) - £130 (non-members £145)

Trainee Drs - £100 (non-members £110)

Other professionals - £75 (non-members £85)

Undergraduate students/Foundation Drs - £45

Conference Dinner* (Weds 20 March) - £30

*Conference dinner will take place at the Holiday Inn Leciester

Click here to book online.

To pay by invoice, cheque or bank transfer, please contact

VENUE The conference will take place at the Mercure Grand Hotel Leicester, a short walk from Leicester train station. There is a secure car park on site and alternative parking options nearby.

The £250 Mac Keith Poster Prize is awarded to the best poster presentation that reports innovative multi-disciplinary working for children and young people with neurodisability and their families.Abstracts selected for poster presentation are:

Novel Research

  • Meeting the increasing nursing needs of children with disabilities, in a large residential special school
  • Developing a multidisciplinary sleep clinic and nurse led telephone service to facilitate the management of Sleep in Community Paediatric Patients
  • Complexity of advance care planning in children with complex needs
  • Early intensive neurorehabilitation and supported discharge for children and young people with acquired brain and spinal injuries: a process evaluation
  • Barnet’s Down Syndrome (DS) Hub and Leading Edge Group (LEG): Multidisciplinary and Multiagency Team-working

Original research

  • A retrospective audit to investigate the completeness of clinical records of paediatric patients with regards to recording the attending adult and parental responsibility status in a dental setting
  • Use of Quality Function Measure to evaluate changes in the quality of movement in children with Cerebral Palsy after Selective Dorsal Rhizotomy
  • What impact does training parents in smiLE Therapy have on deaf children’s ability to maintain and generalise their social communication skills?
  • The Chameleon Project: Transforming Children's End of Life Care
  • Taking the shoes off:  foot-care in children and young people with intellectual and developmental disabilities
  • Advanced care plans: more than just dying
  • Perspectives of children with neurodisabilities, their carers and therapists on use of walkers and modifying them to promote physical activity
  • Behavioural profile of anxiety in autistic individuals with few or no words and individuals with genetic syndromes associated with intellectual disability
  • Clinical audit of scoliosis in Ataxia - Telangiectasia (A-T): current UK practice
  • Multidisciplinary teams in Paediatric Neurorehabilitation for acquired central nervous system injury - an equity analysis


  • Terms and Conditions
  • Full payment of registration fees must be made at the time of booking. If you are unable to register via the online system and pay by credit/debit card, please contact
  • We are unable to reserve places without payment.
  • Invoices cannot be issued after Thursday 7 February 2019. Your place will not be guaranteed until payment has been received.
  • Cancellations must be confirmed in writing to Cancellations received before Thursday 28 February 2019 will receive a full refund on registration fees minus £20 admin fee.
  • No refunds will be given for non-attendance or cancellations received after Thursday 28 February 2019 under any circumstances.
  • Delegates may make arrangements for a substitute to attend in their place at any time with no cost incurred by contacting
  • Missed meals will not be reimbursed.
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