Links

Useful links

Information

WHO International Classification of Functioning, Disability and Health

NSF - National Service Frameworks - National service frameworks (NSFs) are long term strategies for improving specific areas of care

NICE – National Institute of Clinical Excellence - an independent organisation responsible for providing national guidance on promoting good health and preventing and treating ill health

Archives of Diseases in Childhood - online edition from BMJ Publishing Group

British Paediatric Computer and Information Group - established to advance knowledge of and use of information and computing in paediatric and child health practice

CaF Directory - conditions and syndromes which affect children

National Electronic Library for Health - digital library for NHS staff, patients and the public

Mac Keith Press - the leading source of paediatric information publishing on child neurodisability and developmental medicine

Pediatric Database - Dr. Alan Gandy (US)

Virtual Library - medicine index (US)

Google - pediatrics index and search page (US)

UK National Organisations

British Association for Community Child Health - a membership organisation that represents doctors and other professionals working in paediatrics and child health in the community

British Paediatric Neurology Association - promotes improved care for children with neurological disorders

Centre for Evidence Based Child Health - Institute for Child health, Great Ormond Street Hospital

Children Living with Inherited Metabolic Diseases -  umbrella organisation working on behalf of children, young people and families affected by metabolic diseases

Children's Health - in association with Action for Sick Children

Down Syndrome Medical Interest Group - Network of healthcare professionals sharing and disseminating information about the medical aspects of Down syndrome and to promote interest in the specialist management of the syndrome.

National Autistic Society - information about autism and Asperger syndrome, the NAS and its services and activities

National Children's Bureau - works to identify and promote the well-being and interests of all children and young people across every aspect of their lives

National Deaf Children's Society - strives to remove barriers to deaf children in the hearing world

National Centre for Young People with Epilepsy - UK's leading provider of education, treatment and care for children and young people with severe epilepsy and other neurological disorders

Royal College of Paediatrics and Child Health - main objects of the College are to advance the art and science of paediatrics, improves standards of medical care to children, and to educate and examine doctors in paediatrics 

STEPS - nationwide charity providing specially adapted battery operated toys to severely disabled children

European & International Organisations

European Academy of Childhood Disability - an academic association of professionals working with children with disability throughout Europe

International Child Health Group - a Speciality Group of the Royal College of Paediatrics and Child Health (RCPCH), with membership open to everyone with a professional interest in advancing child health internationally.

CanChild: Canadian Centre for Childhood Disability Research - research addressing children and youth with disabilities and their families

International League Against Epilepsy - the world’s preeminent association of physicians and other health professionals working towards a world where no persons' life is limited by Epilepsy

Help for young people, families & carers

ACT - working to improve care and services for all children in the UK with life-threatening or terminal conditions and their families

After 16 - what's new? - choices and challenges for young disabled people

Birth Defects Foundation - information and support

Child Bereavement Trust - founded to improve the support offered by professionals to grieving families

Connexions - information and advice designed for 13-19 year olds in England

Contact a Family - national charity providing support and advice to parents whatever the medical condition of their child

Direct Payments - find out about local disability services and information

Family Fund Trust - purpose is to ease the stress on families in the UK who care for severely disabled children under 16, by providing grants and information related to the care of the child

Include your organisation

If your organisation would like to be mentioned on these pages, please contact (bacd@rcpch.ac.uk).

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