Funded studies that have been externally peer reviewed

We think there are two main reasons for having such a list:

  1. It indicates to other researchers or aspiring researchers in paediatric neurodisability where research is taking place and what the research topics and questions are. They may want to contact the lead investigators.
  2. It will begin to demonstrate the strength of paediatric neurodisability research in the UK. There has been a tendency to think there are few projects and what there is small scale. Such a list shows this is not the case and that the UK is strong. This may encourage other researchers to enter this field; and grant bids (especially for networked national and international research) can be strengthened by citing such expertise.

This list wants to be comprehensive but there is no ‘selection’ or quality assessment process other than the study should be funded by a major funding body and have been externally peer reviewed. Please contact Kelly Robinson (kelly.robinson@rcpch.ac.uk) at BACD to have your study added to the list.

ASD Studies

Lead(s) Centre

Funder
Start Date
End Date
Improving outcomes for people with autism spectrum disorders (ASD) by reducing maladaptive behaviour Program Grant
E Simonoff & V Slonims
NIHR Programme Grant
2014
Pre-school autism intervention and autism development: a longitudinal follow up of the Preschool Autism Communication Trial (PACT)
J Green & V Slonims
MRC
2014
Pilot trial of a new parent group intervention to manage repetitive behaviours in young children with ASD
V Grahame, Newcastle University
NIHR RfPB
2012
2014
MeASURe: Measurement in autism spectrum disorder under review
H McConachie, Newcastle University
NIHR HTA
2012
2013
ASD-UK is a UK research family database of children with an autism spectrum disorder (ASD). The aim of ASD-UK is to provide accurate data about children with an ASD to facilitate research and give families the opportunity to take part in research studies
J Parr, Newcastle University
Autistica
2011
Autism and Downs – using York database
G Baird, Guy’s & St Thomas' NHS Trust; J Parr, Newcastle University
Downs Association
2010
Do Weighted Blankets help Children with Autism Sleep? P Gringras, Guy's & St Thomas' NHS Trust
Research Autism
2009
2014
Beating Anxiety Together (BAT). Anxiety in children with autism.
H McConachie, Newcastle University
NIHR RfPB
2009
2011
Do children with autism have symptoms suggestive of reactive attachment disorder?
A O’Hare, University of Edinburgh
CSO
Computer learning in children: the Edinburgh Autism Social Attention trial (CLICKEAST)
A O’Hare, University of Edinburgh
Nuffield
Scottish ASD Assessment Survey

A O’Hare, University of Edinburgh
Scottish Executive
Comparison of motoric skills in ASD & DCD
A O’Hare, University of Edinburgh
Sick Kids Friends Foundation/ University of Edinburgh
Intervention within the British Autism Study of Infant Siblings (iBASIS)
V Slonims & G Baird, Guy’s & St Thomas' NHS Trust
Autistica , Autism Speaks and Waterloo Foundation
Cerebral Palsy Studies
Lead & Centre
Funder
Start Date
End Date
Feasibility study exploring use of Wii Fit in Children with ambulant Cerebral palsy I Male, Sussex Community Trust
NIHR RfPB
2015
2017

An RCT to evaluate increased benefits to upper limb function of home based assistive rehabilitation technology designed for children with cerebral palsy

N Preston, Leeds
NIHR Clinical Doctoral Fellowship
2013
2015
The use of taping to improve thumb and wrist posture and function in infants with non-progressive brain lesions affecting hand function
A Basu, J Kisler, Newcastle University
RCPCH
2012
2014
Translating Neuroscience Advances into therapy: the role of the mirror neuron system in hemiplegic cerebral palsy
A Basu, Newcastle University
WellChild Trust
2011
The effects of night positioning on sleep, postural deformity and pain in children and young people with CP: an exploratory study
T Pountney, Chailey Heritage
NIHR RfPB
2011
2014
Pain in adolescents with CP
A Colver & J McLaughlin, Newcastle University
ESRC
2011
2013
Creating a tool to use to assess visual impairment in children with hemiplegia
M Gladstone, University of Liverpool
RCPCH
2011
2013
Video games for promoting assisting hand in hemiplegia
J Eyre, Newcastle University
NIHR RfPB
2011
Classifying the communication skills of children with CP
A Colver, Newcastle University
European Commission
2010
2012
Eating and drinking ability classification system for individuals with CP
DA Sellers, Chailey Heritage
NIHR RfPB
2010
Study of Participation and Quality of Life in Children with CP across Europe (SPARCLE2)
A Colver, Newcastle University
Wellcome
2009
2011
Speech therapy for young children with cerebral palsy
L Pennington, Newcastle University
NIHR Career Development fellowship, Remedi
Impact of speech disorders onlLiteracy skills of children with CP
L Pennington, Newcastle University
NIHR Career Development
Fellowship
Effectiveness and feasibility of intensive, short term graded exercise for nonambulant children and young people with CP
T Pountney, Chailey Heritage
NIHR RfPB
Nutrition in children with cerebral palsy
J Parr, Newcastle University
Castang
Post-operative pain in children with CP following major hip surgery: a double blind randomised placebo controlled trial of pre-operative Botulinum toxin type A
C Fairhurst, C Lundy, Guy’s & St Thomas’ NHS Trust
NIHR RfPB
 
Motor Disorders Studies
Lead & Centre
Funder
Start Date
End Date
Participation in physical play in children with motor impairments

N Kolehmainen, Newcastle University
MRC

2011
2014
Communication development of young children with motor disorders
L Pennington, Newcastle University
NIHR Career Development
Fellowship
 
Other Studies
Lead & Centre
Funder
Start Date
End Date
Improving health in children with disabilities: an intervention-development study to support participation in leisure in 8-12 year olds with communication and mobility limitations J McAnuff, Newcastle University
NIHR Clinical Doctoral Research Fellowship
2015
2018
Cognitive Orientation to Occupational Performance Intervention with Paediatric Dystonic Movement Disorders H Gimeno, King's College London
NIHR Clinical Doctorate Research Fellow
2014
How should the NHS deliver rehabilitation services for children after acquired brain injury? R Forsyth, Newcastle University
NIHR Programme Development Grant
2014
2017
A multicentre randomiSed controlled TRial of IntraVEnous Immunoglobulin (IVIg) versus standard therapy for the treatment of transverse myelitis in adults and children (STRIVE trial) M Lim. Guys Hospital
NIHR HTA
2014
2018
The drooling reduction intervention trial (DRI): a single blind trial comparing the efficacy of glycopyrronium and hyoscine on drooling in children with neurodisability J Parr, A Colver, Newcastle University
WellChild, The Children's Foundation, Castang, RCPCH
2013
2015
Screening for Obstructive Sleep Apnoea in Children with Down Syndrome: better screening to help early diagnosis and unnecessary suffering C Hill, Southampton and P Gringras, Guy’s & St Thomas’ NHS Trust
Action Medical Research
2013
2015
How can health services contribute most effectively to facilitating successful transition of young people with complex health needs from childhood to adulthood?

A Colver, Newcastle University

NIHR Programme Grant
2012
2017
A Feasibility study of the Care for Development package for rural and urban parts of Malawi
M Gladstone, University of Liverpool
Academy Medical Sciences
2012
2014
Non-pharmacological interventions for Attention-Deficit/Hyperactivity Disorder (ADHD) delivered in school settings; a systematic review of quantitative and qualitative research
T Ford, University of Exeter
NIHR HTA
2012
Supporting Teachers And childRen in Schools (STARS): a cluster randomised controlled trial with parallel economic and process evaluations
T Ford, University of Exeter
NIHR PenCLAHRC &
NIHR Public Health Research Programme
2012
CHildren’s oUtcome Measurement Study (CHUMS): Informing the NHS Outcomes Framework: what outcomes of NHS care should be measured for children with neurodisability?
C Morris, University of Exeter
NIHR HS&DR
2012
Postural care education programme E Hutton, Canterbury University
NIHR RfPB
2011
2013
Developmental aspects of severe visual impairment (OPTIMUM)
A Salt, Great Ormond Street NHS Trust
RNIB
2011
What are the benefits and costs of providing peer support to parents of disabled children?
C Morris, University of Exeter
NIHR PenCLAHRC
2011
Improving communication with disabled children when they have to spend time in hospital
C Morris, University of Exeter
NIHR PenCLAHRC
2009
PenCRU: Peninsula Cerebra Research Unit for Childhood Disability
S Logan, University of Exeter
Cerebra
2009
Behavioural, emotional and cognitive disorder and difference in neurogenetic disorders
C Oliver, University of Birmingham
Cerebra
2008
2013
Melatonin
P Gringras, Guy’s & St Thomas’ NHS Trust
NIHR HTA
2008
Data sources
N Spencer, University of Warwick
ESRC
2008
A longitudinal cohort study of people with lysosomal storage disorders
S Logan, University of Exeter
NIHR HTA
2007
ICISS  The International Collaborative Infantile Spasms Study: A randomised trial in the medicinal treatment of infantile spasms F O'Callaghan, UCL, London
Castang, BURP
2006
2015
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