The ICoN study aims to find out how NHS staff assess and treat children with special educational needs and disability to help them become continent. ICoN wants to hear from families, young people, health professionals, and school and social care staff about their views and experiences.
Research to evaluate the ways to improve continence for children with special educational needs and disability was in the top 10 research priorities as voted for by families and clinicians. It is really exciting that we have the opportunity to be addressing this often neglected topic in research that is central to the daily lives of children and families.
The survey is part of research funded by the National Institute for Health Research that also includes a systematic review of evidence.